Logo RIMS

SIG Patient Autonomy - Publications

 

  1. "Decisions on multiple sclerosis immunotherapy: New treatment complexities urge patient engagement. J Neurol Sci 2011;306:192-7."
    Heesen C, Solari A, Giordano A, Kasper J, Köpke S.
  2. "Autonomy preferences, risk knowledge and decision making performance in ms (AutoMS): the Control Preference Scale. Oral presentation at RIMS 2011 Conference, May 13-14 Turku, Finland."
    Solari A, Giordano A, Köpke S, Kasper J, Lugaresi A, Pugliatti M, Van Nunen A, Vahter L, Drulovic J, Clanet M, Sharrack B, Fulcher G, Heesen C, on behalf of the AutoMS-group
  3. "Risk knowledge and planned behavior questionnaires – new tools to assess decision-making in MS. Presented as poster at RIMS 2011 Conference, May 13-14 Turku, Finland."
    Heesen C, Köpke S, Kasper J, Giordano A, Van Nunen A, Vahter L, Drulovic J, Clanet M, Sharrack B, Fulcher G, Solari A, on behalf of the AutoMS-group.
  4. "Multi-language translation and cross-cultural adaptation of the patient-reported relapsing-remitting MS risk knowledge questionnaire on immunotherapy (RRMS-IRKQ): methodological issues (#52). Mult Scler 2012; 18: Suppl. (Abstract) S25-S28."
    Heesen C, Köpke S, Kasper J, Drulovic J, van Nunen A, Vahter L, Viala F, Fulcher G, Giordano A, Solari A on behalf of the AutoMS project.
  5. "Decision-making in multiple sclerosis consultations in Italy: third observer and patient assessments. PLoS ONE 2013; 8(4): e60721. doi:10.1371/journal.pone.0060721"
    Pietrolongo E, Giordano A, Kleinefeld M, Confalonieri P, Lugaresi A, Tortorella C, Pugliatti M, Radice D, Goss C, Heesen C, Solari A, on behalf of the AutoMS project.
  6. "Role preferences of people with multiple sclerosis: Image-revised, computerized self-administered version of the Control Preference Scale. PLoS One 2013; 8: e66127. doi:10.1371/journal.pone.0066127."
    Solari A, Giordano A, Kasper J, Drulovic J, van Nunen A, Vahter L, Viala F, Pietrolongo E, Pugliatti M, Antozzi C, Radice D, Köpke S, Heesen C, on behalf of the AutoMS project.
  7. "Patient autonomy in multiple sclerosis - Possible goals and assessment strategies. J Neurol Sci. 2013. doi: pii: S0022-510X(13)00097-X. 10.1016/j.jns.2013.02.018. [Epub ahead of print]"
    Heesen C, Köpke S, Solari A, Geiger F, Kasper J.
  8. "Patient expression of emotions and neurologist responses in first multiple sclerosis consultations. PLoS One 2015; 10: e0127734. doi: 10.1371/journal.pone.0127734"
    Del Piccolo L, Pietrolongo E, Radice D, Tortorella C, Confalonieri P, Pugliatti M, Lugaresi A, Giordano A, Heesen C, Solari A, on behalf of the AutoMS project.
  9. "Information provision for people with multiple sclerosis. Cochrane Database Syst Rev 2014, Issue 4. Art. No.: CD008757. DOI: 10.1002/14651858.CD008757.pub2."
    Köpke S, Solari A, Khan F, Heesen C, Giordano A.
  10. "Risk knowledge in early multiple sclerosis (RIKNO 1.0) - development of an outcome instrument for educational interventions. PLoS One 2015; 10:e0138364. doi: 10.1371/journal.pone.013836."
    Heesen C, Kasper J, Fischer K, Köpke S, Rahn A, Backhus I, Poettgen J, Vahter L, Drulovic J, Van Nunen A, Beckmann Y, Giordano A, Fulcher G, Solari A, for the AutoMS-group.
  11. "What should a person with relapsing-remitting multiple sclerosis know? – focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0). Mult Scler Relat Disord 2017; 18: 186–195"
    Heesen C, Poettgen J, Rahn A, Liethmann K, Kasper J, Fischer K, Backhus I, Vahter L, Drulovic J, Van Nunen A, Wilkie D, Beckmann Y, Paul F, Köpke S, Giordano A, Solari A, for the AutoMS-group.

 

join button_small

Partners

  • Logo MS Journal
  • Logo MS Data Alliance
  • Logo cMSc
  • Logo European Committee for Treatment and Research in MS
  • Logo World Federation for Neurorehabilitation
  • Logo International Journal of MS Care
  • Logo European MS Platform
  • Logo CONy
  • Logo MS International Federation

Rims Sponsors